Today, as I’m starting a new month in my planner, I’m finishing my final day as 22. In the past two weeks I have written 5 drafts of blog posts, some of them I spent hours writing. Nothing I could say felt like it expressed how I felt, and those that came close I felt…… Continue reading 22 and me
When I first started writing here I needed a space to feel relevant to someone. I was just diagnosed and very sick, isolated to my room and hospitals and was desperate to feel heard and connected to others. I began to document all the things I was doing to get better, recipes I was making…… Continue reading life (leaving out the L-word)
For the past month I’ve been avoiding taking the time to process what’s happening to me. I’ve been really busy trying to catch up in school, finish my semester, go back to work, attend events I made commitments to. When I took time to myself I was tired and trying to deal with anything felt…… Continue reading Resistance
relapse [rē-laps] noun: a deterioration in someone’s state of health after a temporary improvement. in lupus and other chronic diseases this is referred to as a flare-up. 114 days ago I wrote my post on remission. 2 weeks ago it ended. On the morning of Halloween, I woke up with immense pain when I swallowed.…… Continue reading relapse
remission re·mis·sion [ri-mish-uh n] noun: a diminution of the seriousness or intensity of disease or pain; a temporary recovery. What is remission? I’ve had doctors tell me this is the “goal”. Some doctors describe remission as no signs of active lupus in your blood work, some explain it as the absence of symptoms, some as…… Continue reading “remission”
I know from experience that things like unhealthy eating and living habits, stress, lack of rest… you know the list…. can lead to a flare up. But sometimes when you feel like you’re doing all you can- it finds you anyway. After just writing my one year post a few weeks ago and basking in…… Continue reading You Can Run but You Can’t Always Hide
Happy 2017 to everyone!! I meant to post this before the new year but I haven’t been feeling my best this past week. I love Christmas a LOT but for some reason a few down days always follow. Germs from hugging so many family members, from traveling, or just the toll it takes on some…… Continue reading 2016
Happy belated-Thanksgiving to all my Canadian followers! This year I have a lot to be thankful for, and I had the most amazing Thanksgiving.. especially because I am now officially prednisone free!!! After 7 attempts, and 18 months of this drug, I am officially no longer dependant on it and it feels great! It was hard, as…… Continue reading Prednisone Free Thanksgiving! (as well as important tapering info!)
Hello Everyone! So I’ve decided to head back to university for another attempt. For my new followers heres a quick recap; I was diagnosed in my first year of university in the spring of 2015, as a result of numerous hospitalizations and flare ups. I then worked towards the goal of returning to school that coming…… Continue reading Julia vs. University: Round Three
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